By Louise Wallace
ONLY a handful of doctors have signed up for free national seminars on chronic fatigue syndrome, prompting patient advocates to call for a change of attitude among health professionals toward the illness.
The organisation expected an overwhelming response to the visit by Dr Hyde, who has more than 26 years’ experience treating the conditions and is the author of several reviews and two books on CFS.
However, despite efforts to promote the event to hundreds of general practices and medical students, ME/CFS Australia said the response rates were “disappointing” so far.
ME/CFS Australia CEO Penny Abrahams said the poor turnout across the country suggested doctors were not taking CFS seriously and did not see it as a “real illness”. As Australian Doctor went to press, a total of 22 doctors had expressed interest in Dr Hyde’s final presentations in Perth and Melbourne.
Blake Graham, president of the ME/CFS Society of WA, said the “pitiful” response indicated a lack of interest from health practitioners. It was also likely doctors opted not to attend because they underestimated the impact of CFS or felt they were unable to treat the condition, he added.
“A change of attitude is needed so practitioners can expand their knowledge and level of care,” he said.
incredibly sad report! when are they going to take seriously our suffering? for every "i mean well" there's a suffering me-cfs patient. the cdc and school of wesseley has done a fine job internationally of damming the river of knowledge-based medicine. shame!
ReplyDeleteHey, its really good written post. Most of us have problems sleeping and don’t feel refreshed when we wake up, no matter how much sleep we’ve had. Research shows that better sleep means less severe chronic fatigue symptoms.
ReplyDeleteThis is very nice information sharing about the Chronic fatigue syndrome. People suffering from this disease is certainly facing a very difficult time.
ReplyDeleteChronic Fatigue syndrome
Almost thirteen years ago I contracted CFS and am now writing this comment in hope of helping others by sharing my experience in overcoming it.
ReplyDeleteCFS began, for me, with almost an entire month in bed thinking at first I had a very persistent flu. It was significantly different from past flus in many ways, however. I had feverish nights where I thought I had “sweated” out the flu but when I got up the next day I didn’t feel better. This was different. I really didn’t improve much, felt very weak and achy.
After a month I returned to work thinking I would just “tough” it out but I couldn’t maintain a normal body temperature. I was continually weak. Also I couldn’t concentrate on what I was doing and there seemed to be a fog in my brain. My nerves were fragil. I couldn’t watch TV or even read a book. If I strained or “pushed” myself my condition got worse.
The nighttime experience of CFS was not only physically but psychologically torturous. On the best of nights I would sleep lightly and fitfully. Most nights however were punctuated by night sweats. I would sleep for two hours and wake up bathed in sweat.
On top of the low energy levels, the poor concentration, the frail nervous system, the “relapse” roller coaster and the night sweats there was the digestive problems. Most of what I considered normal foods made me feel worse within an hour after eaten.
I suffered with CFS for more than 3 years trying many treatments. At first I went from one allopathic doctor to the next hoping for answers. They all had different types of drug therapy to help my condition. Sometimes these drugs worked for a day, sometimes a week, before they stopped working. All had significant side effects. The third physician insisted that it was all psychological and that I didn’t have any actual medical condition. This was in the year 2000 before CFS was not widely known in the medical world. He insisted I see a therapist to get cured. I was desperate and so I went to a therapist for 3 months. She said I definitely had a physical ailment. I then moved on to herbal medicines and dietary improvements for the next year which helped somewhat but seemed far from promising a cure.
Almost three years after first contracting CFS I got lucky. In a used bookstore I picked up a book written and published in the UK by a man who had the identical symptoms I had. He had taken it upon himself to find a cure, not just for himself but for others as well. He was independently wealthy and tried every known treatment at the time, undergoing rigorous blood testing and other diagnostic exams all the while.
The book was mostly about the failures of different treatments but he found something that was so immediately curative that he began to write this book before he had even finished the newly discovered treatment.
This author introduced me to the miracle of The Gerson Therapy and recommended it to every CFS sufferer after he had done extensive medical research on its premises and found them sound. I immediately contacted the Gerson Therapy foundation located in San Diego California and started to personally investigate their literature and the medical claims they made.
I saved up money and began the Gerson Therapy in April of 2003. Nine months later I was not only fully cured of CFS but I was restored to the vigorous health I had experienced in my young twenties. Ten years later I can say without exaggeration that my health continues to astonish me. The Gerson Therapy not only cured me of CFS but opened up a whole new level of physical and psychological health that I didn’t know existed prior. I only want to share the joy and appreciation of good health that has developed in my life after being healed of CFS.
Please contact me directly if you have any questions or doubts: prk699@yahoo.com Blessings and Health to You! Kilaya
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